Tuesday, May 26, 2015

Time to update!

Hi blog world.

I haven't updated in a while because..well, I'm a full-time 3rd grade teacher, mom of 2 crazy kids and a wife, that's why!

I was sitting at the doctor's office with my mom and daughter on Thursday and was trying to recap all that Janelle has gone though for the doctor the past two years. My mom said, "You should have blogged all this!" I am kicking myself because I totally should have!

I decided that I'm going to write what I remember over the past two years, then continue updating as we go along!
   
Here we go:

June 2013- 6 Weeks old: Janelle got a high fever (104) and we were not sure what was going on. Of course it was after hours, so the medical staff on the phone suggested we take her to ER.

Once in the ER, they did EVERY test to rule things out. After ultrasounds and the whole sha'bang the final outcome:  Kidney infection and Kidney reflux in the left side of her kidney.

What the heck is kidney reflux? Well, I found out that the ureter that takes the urine in the kidney to the bladder is not connected to the bladder correctly on the left side.

She hospitalized for a few days, was put on antibiotics, and were were told to follow up with a pediatric urologist.

After meeting with the urologist, he ordered another test (VCUG) to be done to see how bad the reflux was (scale being 1-5, 5 being the worst) She also had an ultrasound of the kidney.

Result: Stage 4. (Devastating news...what's next??)

June- 2013
Janelle spiked another high fever...104. After hours again, we took her to the ER. ANOTHER kidney infection. Antibiotics.

This time the urologist decided to her on prophylactic antibiotics (which means she will take a dose every day to prevent infections).

June 2014- Kidney Infection- Hospitalized- She became immune to the prophylactic antibiotics she was on

July 21, 2014- Ureter Re-implantation Surgery- The doctor said the surgery was "Text book" and went according to plan. After 3 nights in the hospital..things were looking up!!!

October 2014-
Repeated the VCUG which showed what stage her Reflux was at after the surgery. The surgery did NOT fix her problem...but it did go from a stage 4, to a stage 2. Sad news.
 Urologist check in- off prophylatic antibiotics (YAY!) Everything seemed great!

March 2015- Met with the pediatric urologist for a 1 yearish check in since her surgery! No infections since the surgery and doing well off the antibiotics! We were released and didn't need to return unless Janelle had another infection! HOORAY! 

April 2015- Janelle spiked at 104 fever and this time (unlike the other times) her urine smelled a little funny- took her to my pediatrician. They did a catheter test......it was a UTI and KIDNEY INFECTION! She was on antibiotics for the infection, then the urologist put her back on prophylatic antibiotics.

Devastated.  :(

May 2015- Met with a NEW urologist from Children's Hospital of Los Angeles. After going over her case, he wants to keep her on the prophylatic antibiotics, do a test which checks the pressure of her bladder (just to rule out that her bladder is okay) then most likely repeat the re-implation surgery, but laproscopically this time (if everything looks good)

Next Steps:The bladder test is scheduled for June 1st. She needs to have 2 enemas the two nights before (which will be awful, blah!) then the test will consist of putting in a catheter and anal catheter, filling her bladder with fluid, and them measuring the amount of pressure it can hold.



Say a prayer for my sweet Janelle. She has been though a lot in her short 2 years of life. I am thankful that she has something that can be fixed-always gotta find the positive!!

1 comment:

Kathleen Neagle Sokolowski said...

Wow... You guys have been through a lot. I am sorry Janelle has had to face all this. She is a beautiful little girl who always has a smile on her face. She will never remember these tests and hopefully her kidney issues will resolve soon with the surgery. Saying prayers for all of you!