Round 2

The doctor called. The test Janelle agonized though did not show him want he wanted, however he is pretty sure the bladder is not the problem.



The bottom line is- we will repeat the re-implantation surgery. It's not what I want, but at the same time it is because I want her problem to be fixed.



When the day comes, he will go in with a camera and take a look. If things look good, then he will do the surgery laparoscopically. In that case she will only have to stay in the hospital one to maybe. Two nights. If anything looks a little suspect, he will reopen the scar that she already has and do the surgery old school.



After what seemed liked months, the test scheduler called and her surgery will be on Friday, August 21.



I am thankful she is happy and acting completely normal. Although I have to force down her antibiotics every night I know that's what's keeping her healthy.



I do have a prayer request. Two years ago this weekend is when Janelles problem started. My husband, dad and brother were up fishing in the Sierras fishing. The boys have no cell service.  I called the main cabin and informed them and Joel came back to his cabin with a note on his cabin door saying to call his wife. He was panicked.  They rushed home and Janelles was hospitalized.



Last year on the EXACT same weekend we had to take Janelle to the hospital again and she was hospitalized. The boys came home early again!!!



I going to be in edge this weekend...I'm hoping third time is not a charm!!!

Urodynamic Test

On June 1st, we woke up early and headed to CHLA to have a urodyanmic test done on Janelle. The prep for this test was giving her 2 Enemas the previous days before.

I'm glad to say the enemas were NOT as bad as I thought they were going to be, but they still were not pleasant. Thankfully my mom (a nurse) did the dirty work of doing it for me while I kept Janelle distracted singing "I'm a Little Teapot."

Back to the day of the test. The nurse came out and got us at around 7:45am and walked us downstairs to the procedure room.Janelle was already saying "Bye bye" and "all done" while we were sitting in the waiting room. I knew it was going to be long morning! When we got there the room was FREEZING cold. The nurse was making small talk while we waited for the child life specialist (the person who has toys and tries to distract the person having the test done.)

As soon as we sat Janelle on the bed, she started freaking out. Poor thing knew something was going to happen. They had a TV so the nurse popped in Mickey Mouse sing along...which distracted her for about 30 seconds. Once we had to take off her pants and diaper is where the screaming started. Luckily she laid pretty still, but her little blue eyes kept looking at me saying , "Mom, help me!" She got to keep her shirt and jacket on because it was cold in the room. We also placed a sheet over her to help restrain her body.

Once both catheters were in, she seemed a BIT more calm (still screaming mind you) but she was able to repeat words after us from a book i was reading and she stopped screaming for a minute when the child life specialist blew bubbles. When the monitors were being taped to her leg she got more agitated. After about 20 minutes, the test was finally done.

The minute we sat Janelle up and told her we were done she was as happy as could be.

The nurse said that since she was screaming a lot and moving a bit she wasn't sure what the results would be, but she thought she got what the doctor needed.

We will see what the doctor says!!